After a routine trip to the pediatrician...Noelle was diagnosed with Ataxic CP today. I'm not surprised or shocked...but seeing the diagnosis on paper reminded me about how thankful we are that she is even here. After I googled the information on that form of CP...I'm totally shocked that I never figured it out before. I've been looking up information on CP for months now. BUT...all of her doctors had convinced me that she had low/no tone and that was opposite of CP. The pediatrician was shocked today to find out that no one had offered this diagnosis for her.
The main symptoms for this type of CP include extreme low muscle tone and tremors. We have been talking about her tremors since the NICU. Her low tone has always been an issue. Even some sites talk about "jumping eyes." This makes me wonder if she really has the nystagmus (sp?) or if it has been a symptom of the Ataxic CP all along due to the lack of oxygen during her early days.
Here is the great news. Having this diagnosis for Noelle means that she will be able to get more services, more OT/PT and hopefully nursing hours during the day to help my mom and mother in law. It is sad to be excited about such a diagnosis. However, we/I have been waiting for answers to predict some shred of the future with Noelle. It is nice to know that something is going on....and this gives me something to work on. Helping Noelle comes first...whatever that involves!!
So...we are thankful! Thankful for some answers, knowledge and hope. Only God knows what the future truly holds for Noelle...and I'm okay with that!!
xoxo,
Stacie :)
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