So far so good with keeping Noelle at home!! :) :) This illness has really shaken things up around here. Poor Noelle has been struggling to keep her oxygen saturation levels up. There are times that she is wheezing so loudly...I can hear it all the way across the room. There are times she works so hard...her entire body moves while she breathes. It breaks my heart to see that she has to work so hard just to breathe with just an ear infection and upper respiratory infection. Thank goodness she has not come down with anything worse this season. Knock on wood! She slept a good amount of the day yesterday and when she wasn't sleeping...she was crying and fussing. I gave her nebulizer treatments every 2 hours yesterday and then last night woke up a few times to give her a boost in the middle of the night.
Over the past few weeks, we have been able to wean her oxygen. I think the pulmonologists would kill me if they knew how much oxygen she was up to now. But...she's at home and that is the best place for her. We are lucky to have the high flow oxygen at home to help manage these sick episodes.
So, thats the update for now. Noelle is hanging in there. Unfortunately, Andon is having a hard time not getting a whole lot of attention. In fact, he is screaming for attention. I'm hoping today will be better and I'll get to spend a whole lot more one on one time with him!!
Is there anyone out there reading these?? On the carepage, I could always see if people were reading...now I can't...so I'm treating this like my own diary.
Staying home has been quite the adjustment for me. I'm adjusting well I guess. I think things will be better when things at home are normal. Last week was Christmas and this week Noelle is sick. I'm hoping things will level out next week! Happy New Year!!!
Stacie :)
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Poor Noelle :( I'm sorry to hear she is struggling so much. I'll keep you all in my prayers and hope for a quick recovery.
ReplyDeleteI'm reading them and just signed up to be a "follower". I'm also praying for your whole family.
ReplyDelete- Kimberley
I read, but forget to comment sometimes!!! Keep writing.
ReplyDeleteStacey,
ReplyDeleteKeep writing. It's important that you have a record of your issues, interactions, and documentation of Noelle's challenges as well as your actions. And vent like hell when you need to. I'm finally following the blog and it sounds like it is the outlet that you need.
You are no Medicaid fraud person. Next time, get her email address, and send pictures of Noelle at home with all the equipment. Tell her you'll have to put her on speakerphone while you give Noelle a neb treatment. Say, could you hold for a moment please, my daughter is choking. Happens frequently and I know how to take care of it, I'll be right back to you. OOOOOOOOOOHHHHHHHHHH now I'm so mad on your behalf! You do what you need to do, and make sure you send that nasty woman (and her boss) a Christmas card. Grrrrrrr.
I'm sad that you're not working anymore but agree with you that it's best for your family for now. I hope you all get some rest, and that your holidays are nice and quiet and as restful as can be. Felices Fiestas, Happy Holidays, and forgive my rude note above...I'd like to smack that woman! ;.)