Winter Wonderland!

It's been a little crazy around here lately. On Friday and Saturday, we got about 31.5 inches of snow. On Tuesday and Wednesday, we got another 6-7 inches. It's been craziness. We have learned a lot about how to handle winter with a kiddo that needs electricity to stay at home. We bought a generator shortly after Noelle came home the second time from the hospital. We are so thankful that we made that decision. Our power went off and on many times during these two storms. It was scary to say the least. The first time it went off, we were buried under about 20 inches of snow and our road had not been plowed. We had enough gas to last the generator about 30-40hours. It was scary to think that if something happened to the generator, we would have to bail on our house and walk down the mountain to get help. We only have 3 oxygen tanks now because we have the machine that fills them up. However, we were not sure if the generator would hold with the oxygen concentrator and the tank filler machine. Thats a lot of power needed. It was scary to say the least and I think we will prepare a little bit more...just incase we get ourselves into a situation where we can't leave the house but have lost power.

Last night, we lost power for a little while and Noelle's oxygen saturation levels started to drop. I checked all of the tubing and connections and could not figure out what was going on. I changed her cannula hoping that it was twisted in the back and kinking. Still didn't work. About a half hour after the desatting started...I finally realized the sensor on her toe was slipping off (it happens with sweaty toes)...I could not believe I didn't notice that!!! Ugh...

Otherwise, everyone has enjoyed being at home together. Whatever routine we had....is now gone. Daddy and Andon did a great job shoveling some of our driveway. It proved to be WAY too much snow, so we finally called a neighbor and he brought over his 4 wheeler with a snowplow. It took him about 2 hours to plow our driveway and he got stuck several times. We were so thankful that he came over to help us out. It saved our backs big time and was a HUGE sense of relief! :)

Noelle has really been enjoying her "stander." She can now put more weight on her legs. She does tire quickly, but I'm sure thats expected until she gets a little stronger. She is scooting around like crazy and is getting quite fast. She has become a little trouble maker. Imagine that?! She pulls the dogs legs, harrases her brother, pulls off her cannula, laughs when we try to discipline her, and in general does whatever we tell her not to!! She's crazy!! I love it though. I remember when she was in the NICU, I was not sure if she would make it this far... so...I'm glad she is getting into trouble...I love it!

Daddy left for work this morning and I made some homemade playdough with the kids. Noelle hated it...but Andon LOVES it. He may play with playdough all day. Once I put the playdough in a baggie....Noelle finally played with it. I'm going to have to tear him away from it to eat lunch!! haha!! He's been a really good boy during all of this snow craziness. He has been a big helper...but hates when the power goes out.

Thats all for now!! Above are our snow pictures from this past weekend. :) :)

xoxo,

Stacie :)